Hope for Gabe partners with local organizations that frequently work with Gabe and other children with disabilities while still donating to the PMD Foundation in support of their mission to proactively serve those affected with PMD through programs of education, research, service, and advocacy.
Gabe VandenBerg was diagnosed with Pelizaeus-Merzbacher Disease (PMD), a rare condition that affects the central nervous system (brain and spinal cord). At this time, PMD has no cure. Fortunately, good people are working tirelessly to understand and eradicate this devastating disease.
Give our love for Gabe, and the recent success of the first three Golf for Gabe outings, we decided to form a new stand-alone charity, Hope for Gabe. We are very excited to start this journey. The formation of Hope for Gabe will allow us to partner with local organizations that frequently work with Gabe and other children with disabilities while still donating to the PMD Foundation through programs of education, research, service and advocacy.
Gabe is a charming boy who loves life. He stays busy attending morning preschool Monday through Thursday at Campus Early Childhood. He loves school and, of course, riding the school bus! Gabe has numerous appointments each week where he receives physical therapy, occupational therapy and speech therapy. While he continues to make progress by gaining strength and achieving goals, Gabe still requires support to sit and stand. Most recently, Gabe is motivated and working hard with his new Tobii Dynavox communication device. This device helps Gabe create words and sentences by tracking his eye gaze on a computer screen. His continual hard work makes us proud everyday!
What We've Achieved
- Last year over $75,000 was raised for the PMD Foundation
- The 3 year running total for funds raised for the PMD Foundation is more than $158,000
The PMD Foundation Purpose: This family driven foundation will proactively serve those affected by Pelizaeus-Merzbacher Disease (the PMD community) by supporting programs of education, research, service and advocacy. We are dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social service, and genetic counseling; establishing a communications network among families; increasing public awareness and acting as an information source for health care providers; and promoting research into causes, treatment, prevention and cure of PMD.
For more information on The PMD Foundation, please visit: www.pmdfoundation.org